*Swipe Along * - World Sepsis Day Thank you NHS .. you bought me back to my children and I am forever grateful ❤️
#EPILEPSYLIVESMATTER💜 • My dear friends at @angels_of_epilepsy are having a campaign to set the focus on epilepsy and our stories! And I promised I would share some of my story. This picture show you how serious it can get. It’s life or death. I had my first tonic-clonic seizure at age 21. I was put on a ventilator for a few hours. From there on this disease would become hell. December 2013 and all the beginning of 2014 was filled with seizures and hospital stays. It was a never ending story. We upped my dosage of the meds again and again, and I became seizure free for a few months. Then it got more serious. Status epilepticus. A life threatening condition in epilepsy were a seizure doesn’t stop or it stops, begins, stops, begins again and again without ending. You need immediate medical attention. I’ve been in status more times than I can count now. Been in it three times since June; every time on a ventilator and in a medical induced coma to let the brain rest. This photo is from this August. I laid like this for three days. Woke up, had new seizures when they were to move me from the ICU to the neuro ward, but they managed to stop them. This is from Denmark. I was on holiday and had the time of my life as you’ve seen; but on the way home I started seizing. And then I woke up three days later all alone, in pain and scared. It’s hell. I can’t put into words how horrible it is and how painful it is. I’m scared. Because this keeps happening. “Life threatening epilepsy”. You don’t want those words hanging over you. But I do. And I fight for my life every single day! I try to live despite it all, and keep on waking up in different hospitals. My brain and body survive every time. Only my memory, vision and speech gets affected now. It’s heartbreaking. Because I don’t want to live like this. But this is the face of someone with a severe case of epilepsy. This is the face of a fighter, a survivor. This is why we need a cure! I’m amazed by how much my body can handle. But I’m still here, still smiling. Through all of this. This is my reality. This is life with epilepsy. #fuckepilepsy #ICU #fighter #anitasfight #anitaelisabethsfight #epilepsywarrior #warrior
#Fbf sometimes you have to remember you’ve been though worse things then the current situation....just gotta learn from what happened, accept what is, work towards what will be! #teamjose #pizzaislove #universityofutahhospital #inducedcoma #katwilliams #forgiveness #friendsbecomefamily #foe #memoryproblems
When ever you are being hard on yourself, remember how far you have come. Give yourself credit for all the hard work you have done and be grateful for all the support you have had along the way! This was me in the hospital in an induced coma when the docs wanted to amputate my leg. I have to remind myself every day that I've come a long way and still coming along. Like we say in Texas! Get 'er done!
https://www.gofundme.com/steve-louttit-spook-head-trauma My husband Steve, also known as Spook or Tappet, has been a truck driver his whole life. I have been a truckies wife for nearly 35 years. Our family desperately needs help at the moment. Thank you in advance. #gofundme #devastated #misshisvoice #inducedcoma #skullfracture #pulmonaryembolism #familyman #dialysis #pleaseshare #thanksinadvance
Today is the 1 year anniversary since I got discharged from the hospital, i remember it like it was yesterday... I was so over the moon to be going home but at the same time I was so petrified I would end back up in there! I still felt so poorly, but I needed to be home with my family, the walk out was the hardest and felt like the longest walk I’ve ever done, I cried in the car when we started driving... I felt free, Free of the horrific nightmare I had gone through and just to smell the fresh air, look at the beautiful autumn trees..🍁 it was so beautiful... when I Arrived home I went to go up the stairs and couldn’t even walk up one step... I knew I had a battle still on my hands, but my fight for life and to survive was so strong, I feel so lucky and blessed to be able to watch my babies grow and enjoy everyday with the people I love so much, cherish your loved ones and be thankful for good health you really never know what is around the corner #recovery #csectionrecovery #icu #intensivecare #inducedcoma #stoma #iliostomy #ptsdawareness #ptsd #postbirth #emergencycsection #premmie #32weeker #fighter #bethankful #humble #thankfulforlife #health
Dad came down sick yesterday with a cold. He couldn't stop coughing and made it hard to breathe and then he couldn't talk. Ambulance came and got him and when he got to the hospital the pit breathing tubes down him and put him in a medically induced coma. He has a machine breathing for him. They tried having him breathe on his own this morning and this evening but he wasn't able to. He is in the ICU. #icu #getbetter #inducedcoma
Here I was before my scheduled surgery on Sunday morning, sitting outside the hospital and enjoying a joint, trying to relax. Everything was going as planned, but I had a bad feeling in my gut. Something just didn't feel right and I told whoever was with me. They reassured me. Everything was going to be okay. But of course it wasn't, because I'm the 3rd person my surgeon has operated on since 1998 who got a terrible allergic reaction to the dye that they injected in me to be able to see the lymph nodes clearly. Anaphylactic shock. My blood pressure dropped to my boots. My whole body started swelling and my organs started shutting down. If I hadn't already had a ventilator in my throat, I would have died. I woke up on Monday night in ICU out of an induced coma, choking on the pipe down my throat that was breathing for me. Drips everywhere, pipes everywhere, my throat and chest burning, my boob bright blue and my body completely swollen. I had no idea where I was or what had happened. I am out of the hospital, but I am still so fragile. I feel like a piece of myself. I have been struggling emotionally since I woke up and trying to accept that surgery is scheduled for Sunday again, this time without the dye. Thank you to every single person who prayed for me. I really believe that I'm here because of all of you. And for all the messages of love, support and kindness. I am so lucky. I don't even know how to possibly thank you all. Cancer won't win this one guys. I promise. #Cancer #BreastCancer #BreastCancerAwareness #Surgery #ICU #AnaphalycticShock #Scare #Health #Allergy #AllergicReaction #InducedComa #Prayer #Gratitude #Friends #Family #WhereISmoke #MyJourney #TheRightStrong #GirlsWhoFightCancer #FuckCancer #Seriously
Today is exactly a year since I was first admitted to hospital. My body has been torn apart, I have bled to death 4 times and my heart has stopped 3 times. Intensive care and High dependency units and long stays on specialist care wards. I'd never be here today if it weren't for the people I had supporting me at the time, and I can't believe just how lucky I truly am. Mental and physical scars will fade in time. But for now. I'm just happy to be here!!! #sepsissurvivor #sepsisawareness #ivcfilterremoval #ivcfilter #brokenivcfilter #lobeectomy #laperotomy #chestdrains #intensivecare #inducedcoma
4 years today & im still looking down at these feet thinking .... how did we do this 🤷♀️ . . . #12th #brainhaemorrhage #thedayitallchanged #gamechanger #lifechanging #traumatic #bleedonthebrain #brainanyeurism #inducedcoma #survivor #livingwithabraininjury #itwasalongroad #brainhaemorrhageawareness #mindfulness #selflove #loveyourself #newleaseoflife #bloggerstyle #reallifeshit #momswhoblog #irishbloggers #myjourney #livinglifetothefullest #luckybutunlucky #mylifediary
A year ago getting a message from Rachel was amazing. After about 19 days after she last messaged me due to being in a coma and her phone being locked. Loved getting this from her 😊😘❤😍 @spoonfulofsugar8847 #icu #inducedcoma #kidneyfailuresucks #liverfailure #Rayne #kingscollegehospital #fiancee
🏥 TRAUMATIC TUESDAYS 🚑 ——————————————————————————— Faark. It hits home real hard seeing this and to find out you were trapped inside a rolled truck for 2 hours before being released, to then be worked on on-site for another hour after that laying next to it where you had to be placed into an induced coma because i had blocked airways. To then find out i was then airlifted from site to John Hunter Hospital in Newcastle and spent 4 days in a coma in the Intensive Care Unit 😢 ——————————————————————————— #hitshome #trauma #horrific #seriousaccident #truckaccident #ICU #intensivecareunit #4days #inducedcoma #JohnHunterHospital #Newcastle #blockedairways #brokenarm #headinjury #braindamage #rippedear #neckbrace #spinalbrace #airlifted #trapped #truckdriver #kw #kenworth #bdouble #luckytobealive #guardianangels #watchingoverme #cantrememberanything #imsorry #jd__93photography
#sincityseeds #sincitystyle #inducedcoma #homeofdank #teamoilers #highlanderfarms #primordialsolutions #rootsorganic #greengro #naturespride #microbelifehydro #greatwhitemyco #be_1organics #michigangrowers #migrows #organicmechanics #organic With the royal lineage of Nightmare Cookies and Powernap I'm looking for gold
"Oh yea I been still on my mission with the 365 cardio stepup challenge #day282 just didn't want it to get redundant but have all the videos and pics of every workout last one to be doing this I started this challenge and I'm going to finish it!" #nutritionfacts #mryouwontoutworkme #halfmanhalfamzing #disabilitysports #strokesurviorsneverquit #coma #nevergiveupever #igotus #ipromise #specialolympicsathlete #survivor2018 #videoedits #bestvideooftheday #cardioexercises #ﬁtness #inducedcoma #inspirationalquotes @thestrokes #strokesurivor
#sincityseeds #sincitystyle #inducedcoma #homeofdank #teamoilers #highlanderfarms #primordialsolutions #rootsorganic #greengro #naturespride #microbelifehydro #nectarforthegods #greatwhitemyco #be_1organics #michigangrowers #migrows #organicmechanics #organic mad scientist type stuff....new life
#inducedcoma #2015 #cancersucks I couldn’t breathe and left work. I was admitted for unknown reasons, but in ICu given I had finished chemo. I had pneumonia from radiation and bleomycin. I went into heart and respiratory failure on my 34th birthday My family was called in, Drs did not know if I would survive. I woke myself up 3 days later. I got a second chance. Don’t ever give up. #lymphomaawareness #heavenisforreal
Please read this latest blog post about my friend Tana being healed from Lyme. God is sooooo real and sooooo good! . . . Chronic illness is no joke, but God can do ANYTHING. . . Faith is so key because when you KNOW that God is with you every moment of your illness, you have unexplainable peace and hope. Stories like Tana's makes me so thankful that I have a miracle working, all-powerful Savior by my side. This story will give you goosebumps! . . #godheals #miracleshappen #healedmiraculously #godisincontrol #lymedisease #lupus #ourgodisgreater #ifgodisformewhocanbeagainstme #gjtube #intubated #inducedcoma #miraculouspregnancy #seizures #failuretothrive #jesussaves
I know...so boring here! But alas, CorRoborate is not dead. Merely in a productivity induced coma. Just wrapped late, LATE night filming for a short called "Runner" with @lefteyevision , @elloryyu and the rest of the @patchworkvisions crew! Check them out on social and web for BTS stuff and updates. Also stayed tuned for updates on the new(ish) series Kaffeehaus. #imbackbitches #filmmaking #shortfilm #sandiego #productivity #inducedcoma
Last day of intensive rehab today. It’s been a wild ride. A HUGE vielen Dank to the Kreischa Kinderklinik medical and therapy team! New post is up looking back at where we started and what Jack has accomplished since we first arrived. (link in bio). And totally by accident I just noticed that Jack wore his tie dye for both his first and last full day of rehab. #tiedyebaby #youcantaketheboyoutofthecreek
When we arrived at intensive rehab almost 8 weeks ago, Jack couldn’t hold his head up, he was barely vocalizing let alone babbling, he couldn’t reach and grasp, he only looked over his left shoulder, he was tube fed and had very little voluntary movement. We’ve come so far with this little fighter. Today we saw him spin himself 180 degrees in tummy time, eat noodles (and eggplant... what a palate.... 🍆👼🏼) feed himself a melting cracker (or 5) try to hold up his own sippy cup (crush his water goal for the first time... 370ml!), heard him make the snake sound and work very hard to try and make it a few centimeters closer to the bookshelf. To call him determined is an understatement. 💪🏻 how’s that for a #transformationtuesday Goals: sitting up unsupported, crawling, more solids, being able to handle finger foods, using both hands and working on that pincer grasp.
Someone’s figured out the ultimate lounge... when he’s not dishing out the blue steel- see second pic —>. Had a great day today and have started to notice how much better his right hand is getting... Jack is trying to feed himself more food and is grasping things with an inward flexion more often (vs. an outward hand). In tummy time he is pushing himself up further and is kicking his legs more. C’mon crawling c’mon! (Chances are he’ll be on the move just in time for our flight home 🤞🏻🤦🏼♀️)
OH SWEET CHILD OF MINE | This kid put me through the wringer today. Every week is new with him. This week he is 100% against napping in his crib- “the carrier will do nicely thank you very much.” And true to his Old Jack nature decided today that he was also not so interested in sleeping through his latest EP (a specialized musculoskeletal, electrophysiological EEG) test this afternoon. Despite the TWO sedatives they ended up giving him. The nurses claimed he’d be sleeping all afternoon. Not so, nurses. Not so. He didn’t sleep at all through his test. In fact it took 2.5 hours for us to get him to sleep. And while Matt & I were busy biting our nails over how doped up and “floppy” his body seemed, Jack was busy “dadada”-ing to the technician. I would love to say that I handled my whiny morning with Jack with grace and then quietly tried to get him to sleep while he was on sedatives and hooked up once again to a vitals machine. But I didn’t and I wasn’t. I stressed. And I huffed and puffed. Matt did much better with the stress today than I did. We seem to balance each other out that way. | After Jack finally napped Matt and I, as usual, were able to hash it out and decompress and laugh at this crazy little kid who is ours.
This is the way you do it right? | This kid was the ultimate goof today. Jack’s found many ways to “ride” his stroller including in tummy time and a side lounge apparently. | On a more serious note, one of the difficult things about this process has been to mourn the loss of one version of your child while getting to know this new version (while also seeing snippets of his old self shining through). Old Jack would never stick with one activity for more than a few minutes. If we were lucky. Once he was done a task it was on to the next thing. And quickly. Jack now will happily sit on someone’s lap and busy himself practicing his fine motor skills taking something out of a container and putting it back in. Over and over again. Old Jack loved soothers. Jack now has zero interest in them. (Probably due to dysphagia from the neurological changes he’s experienced). Old Jack loved making the dog, whale and monkey animal sounds. Jack’s now been into the clip-clop horse and snake sounds and fish face. 🤷🏼♀️ Regardless, Jack could always be a goof and maybe it was the heat, but this little man was hamming it up wherever he went today. Maybe all of his old personality traits will edge their way back in or maybe some will be forever a memory of his first year of life. Kids change so quickly as it is- maybe half of it can be blamed on natural development. But either way Jack’s smile (swipe left for a shot of that grin) and goofy antics will win my heart over again and again. ♥️
Peek-a-boo! Turning every play session into therapy over here. We’re working hard to get Jack to play with both hands. He’s predominately been using his right, and today his left arm seemed less active to me than yesterday. But, when you remind him, he will activate that left side. Go, go, gadget arm. 💪🏻
Weekends off from rehab mean lots of time to play and hang in town with Oma. But just because we’re not in rehab doesn’t mean there’s no therapy. We kept this boy busy rolling, working on drawing his legs up, doing tummy time, fine motor practice and eating. (a.k.a. Oma feeding him lots of ice cream) 🍦
And this is after “cleaning” him up. Nothing like a good finger painting session to get those neuro sensory pathways fired up! Jack is in great spirits and I see small improvements in so many areas today: core strength, leg movement, facial expression and cognition. Maybe it’s after getting such a good report from the doctor yesterday. #pollock #vangogh #jackotto
It may not seem like a lot, but to see both Jack’s legs bent in tummy time is big. He mostly only brings up his right leg because that’s his stronger side. Looking good little lion! 💪🏻
This is the only photo we have of Jack on the ventilator. It’s not easy to share but it’s important for us to do so because it’s such a powerful visual of how far we’ve come. This journey is far from easy and far from over, but Jack overcomes so much and shows us his grit every day. We didn’t teach him that, it’s just who he is. He’s our hero.