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We are still here and going kinda stir crazy! In this pic she was a ice skating princess putting on a show for me! Lungs are still hanging at 80% need them to be over 100. She’s broke out in crazy rashes everywhere they have stuck her. Her central line dressing is super itchy so they are trying to figure out what’s going on. Some may have seen my story and I was admitted too! Yes I have so many issues with my Ostomy area. (I have no colon) it’s been a real nightmare. Our lives this past year honestly insane. 2020 needs to give us some major love for real. Thanks for all the support and love we really appreciate it. #fuckcf #maddysmissionforacure . . . . #inpatient #hospitallife #getmeoutofhere #chronicillness #terminallychill #cysticfibrosis #curecysticfibrosis #maddysadventures #sandiego #sandiegokids #radyschildrenshospital #plumkids #iloveplum #cfirl #cfmom #hospitalbed #sickkids #hospitalkid #holidaysinthehospital #fuckcysticfibrosis #fuckulcerativecolitis #fuckcrohns #lifesuckssometimes #weneedbetterluck #abc7eyewitness

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reinwaldmotorsports. After last nights fuel issues and our continued bad luck - we are back

After last nights fuel issues and our continued bad luck - we are back out tonight with the big boys. Squeaked in through b-main with fuel issues continuing. 🤞we got the issue fixed. So to the brothers 🍻 to a safe and fun race. #dirttrack #dirtmodified #brothers #economodvsemod #septembersweep #weneedbetterluck

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ajmeranto. Here’s my Valentine getting fitted for a boot because he broke his ank

Here’s my Valentine getting fitted for a boot because he broke his ankle doing a backflip off the deck - I MEAN - from slipping on some ice while walking the dogs. Anyone else have a date with pizza delivery and Netflix tonight? #livingthedream #weneedbetterluck #atleastthereispizza

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shesjustbeingashley. Smudged my entire house today for the first time ever. @rad_itude hook

Smudged my entire house today for the first time ever. @rad_itude hooked me up with sage a long time ago and I know she would be proud! #weneedbetterluck #smudging #goodenergy #cleansing #sage

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brotsky1. Enjoying our evening at the Elk banquet!  #rmef #fortheelk #weneedbett

Enjoying our evening at the Elk banquet! #rmef #fortheelk #weneedbetterluck @ngjoraas @kiagymnastics

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discovercharlottetown. Little bit o' lush greenery to brighten this post/pre-storm day! Happy

Little bit o' lush greenery to brighten this post/pre-storm day! Happy St. Patrick's Day folks! #Charlottetown #PE #Canada #NoMoreSnow #WeNeedBetterLuck

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